You already knew.
Gaze unflinching, 
you told us to say the words.

Amyotrophic lateral sclerosis

A. L. S.

Despite sparse questions,
your eyes revealed
an understanding far deeper
than our answers-
that with one moment,
robbed were you
of the years ahead,
of memories awaiting,
of stories belonging to you.
Now lost.

Strength dissolving,
your conviction remains
unscathed.
You savor
each passing sunrise.
Each caress, each step.
For you know.
As your legs cease to support,
arms stop to comply,
you still feel
your child’s touch.
Absorbing her love.
Pretending
you don’t care the roles
have been reversed
as you yearn
to return her embrace.

As its hunger ascends,
You treasure
the remaining days.
Every word, every smile.
For you know.
Soon it
consumes your voice,
drains your visage,
until all that is left is
the silence
of a vacant mask.
Unable to reflect
your thought’s grin,
your heart’s laugh,
your soul tears
as you blink away the moisture.

As your breaths
increasingly betray you,
you are not defeated,
for the flames
of your bruised spirit
are not quenched,
and you give thanks
for the time you had,
even as your body dims
and you fade away.

•

Phoebe Chi, MD

A physician-educator and managing editor of PhoebeMD: Health + Inspiration, Dr. Chi aims to inspire, inform, and empower the reader community. She is the author of Being Empowered for a Healthy Heart: A personal guide to taking control of your health while living with chronic conditions, a poetry-infused health guide, and founder of Pendants for a Cause, a nonprofit organization with the purpose of raising funds to fight illness, provide care, and bring awareness to medically vulnerable populations around the world.

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